Home care management among mothers having children with cerebral palsy in Erbil city

Shukir Saleem Hasan

doi:10.15218/zjms.2014.0021

Authors

Shukir Saleem Hasan Department of Pediatric Nursing, College of Nursing, Hawler Medical University, Erbil, Iraq.

DOI:

https://doi.org/10.15218/zjms.2014.0021

Keywords:

Home care, Management, Mother, Children, Cerebral palsy

Abstract

Background and objective: Care for children with disabilities is often neglected and ignored. It tend not to be taken outside the home because of embarrassment and potential teasing and ridicule from others. Home care is the best way to provide daily care and management for children with chronic disabilities. This study was designed to assess the practices of mothers of children affected by cerebral palsy regarding home care management in Erbil city/Iraqi Kurdistan region.

Methods: A cross-sectional study was carried out during the period from July 1, to September 1, 2012. A convenience sample was taken, involving 100 mothers whom weekly or monthly attended Helena Center for Handicapped Children for physiotherapy and medical managements.

Results: The results revealed that less than half of the mothers were between 24-30 years old, half of them were illiterate, most of them were living with low socioeconomic status, and more than half were living in urban areas. The highest percentage of cerebral palsy children were in toddler developmental stage, the majority complained of spastic type. The present study found that there was significant association between mothers’ age and dental/oral care. There was also significant association between socio-economic status with both of dental/oral care and child safety. There were highly significant association between ages of cerebral palsy children with maintained oral care and hygiene, nutrition, hydration care and constipation. There was significant association between types of cerebral palsy and communication.

Conclusion: The finding of the study refers that the mothers having cerebral palsy child, complained of inadequate skills concerning home care management, and the study recommends a comprehensive health education program for mothers having cerebral palsy child.

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References

Klankaradi K. Never-ending caring: the experiences of caring for a child with cerebral palsy. A thesis presented in fulfillment of the requirements for the degree of Doctor of Philosophy in Nursing at Massey University, Palmerstone North, New Zeland; 2008.

Tella BA, Gbiri CA, Osho OA, Ohunrinu AE. Health-related Quality of Life of Nigerian Children with Cerebral Palsy. DCID: 2011;22 (1): 95-105. Available form: www.dcidj.org.

Helena Center for handicapped children. Annual Census Document; 2012.

King S, Teplicky R, King G, Rosenbaum P. Family-Centered Service for Children with Cerebral Palsy and Their Families: A Review of the Literature. Semin Pediatr Neurol 2004;11(1): 78-86.

Dickinson HO, Parkinson KN, Ravens-Sieberer U, Schirripa G, Thyen U, Arnaud C, et al. Self-reported quality of life of 8–12-year-old children with cerebral palsy: a cross-sectional European study. Lancet 2007; 369 (30): 2171–8. Available from: www.thelancet.com.

Cooley WC. Providing a Primary Care Medical Home for Children and Youth with Cerebral palsy. Pediatrics 2004;114:1106-13. Available from www.pediatrics.org.

Paula JS, Leite I CG, Almeida AB, Ambrosano GMB, Pereira AC, Mialhe F L. The influence of oral health conditions, socioeconomic status and home environment factors on school children’s self perception of quality of life. Health Qual Life Outcomes 2012;10(6): 1-20. Available from: http://www.hqlo.com/content/10/1/6.

Caldero C, Gomez-Lo´ pez L, Martı´nez-Costa C, Borraz S, Moreno-Villares JM, Martinez-Giner CP. Feeling of Burden, Psychological Distress, and Anxiety among Primary Caregivers of Children with Home Enteral Nutrition. J Pediatr Psychol 2011; 36(2):188–195. Available from http://jpepsy.oxfordjournals.org.

Chiarello LA, Palisano R J, Maggs JM, Orlin MN, Almasri N, Kang LU, et al. Family Priorities for Activity and Participation of Children and Youth with Cerebral Palsy. Phys Ther 2010; 90: 1254-64.

Murphy NA. Parent-Provider-Community Partnerships: Optimizing Outcomes for Children with Disabilities. Pediatrics 2011; 128 (4): 795-803.

Hanprasitkum Ch, Wichiencharoen K, Seeda R, Priyatruk P. Caregivers’ Needs for Caring Cerebral Palsy Children at Home. Thai J Pediatric Nurs 2001; 1(1): 89-99.

Mu'ala E, Rabati A, Shwani S. Psychological Burden of a Child with Cerebral Palsy upon Caregiver in Erbil Governorate. The Iraqi postgraduate medical journal 2008; 7 (2): 129-34.

Flanagan AY. Families of chronically ill patients, American Nurses Crediting Center's (ANCC), CME Resource 2010; 30:1-38.

Glasscock R. A phenomenological study of the experience of being a mother of a child with cerebral palsy. Pediatr Nurs J 2000;26 (4): 407-10. Available from: http://www.ncbi.nlm.nih.gov.

London ML, Ladewig PW, Ball JW, Bindler RC. Maternal and child nursing care, 2nd edition. New Jersey: Person education; 2007. P.1702-7.

Canadian Pediatric Society (CPS). The child with multiple Impairments. Pediatr Child Health 2000; 5(7): 397-402.

Schwartz MW, Bell LM, Bingham PJ, Chung EK, Cohen MI, Friedman D, et al . The 5 – minute pediatric consult. 3rd edition. London, UK: Lippincott Williams & Wilking; 2003. P. 230-1.

National Center on Birth Defects and Developmental Disability (NCBDDD): Economic costs Associated with Mental Retardation, Cerebral Palsy, Hearing Loss, and vision impairment . United States. MMWR 2004;53 (3): 57-9. Available from: http://www.cdc.gov/

Arksey H, Beresford B, Glendinning C, Greco V, Sloper T. Outcomes for parents with disabled children and careers of disabled or older adults: Similarities, differences and the implications for assessment practice. Social Policy Research Unit, University of York; 2007. P. 1-22. Available form www.york.ac.uk/spru.

Datta P. Pediatric Nursing. New Delhi, India: Jaypee brothers medical publisher; 2008. P. 397.

Antle BJ, Mills W, Steele C. An exploratory study of parents’ approaches to health promote in families of adolescents with physical disabilities. Child Care Health Dev 2008; 34:185–93.

Jinming Z, Jianjun L. Survey of mothers of children with cerebral palsy. Intern NGO J 2010; 5(5): 129-2. Available from http:// www.academicjournals.Org / INGOJ.